I asked the questions they didnt answer

I got fed up of not knowing and emailed the consultants secretary on Eddies behalf for some answers.

He wrote to Eddie and confirmed that what I had thought Eddie has was correct, Hydrocephalus due to stenosis of the aqueduct of sylvius and that it was congenital.

He said that Eddies symptoms were not typical of that of hydrocephalus and because of this and the fact his ICP was normal, surgery was not an option, and instead he was being referred to a neurologist. He did not know why his symptoms have worsened.

It made me angry, if his symptoms are not typical of that of Hydrocephalus, what are they? They have done one MRI scan, do they know if the passage had thinned further? And if his symptoms are not typical of Hydrocephalus then why are those symptoms directly related to his condition on thousands of websites and doctor research sites?

Could the passage thin completely? According to many doctors reports and (it shivvers my soul to say it...) pathologist reports...yes, and if it thins too much or blocks completely, my daughter is going to loose her Daddy.

Why wont they do something???