Finally....Answers? surely???

The neurosurgeon appointment came up and in the brief time in the room the consultant explained that he had narrowing of one of the passages in his brain, and that he wanted to send him for ICP monitoring. He was diagnosed with Hydrocephalus.

The ICP monitoring came back normal, he did not have any episodes during the hours that they monitored him and he never left the bed. He also said that after the procedure which was performed under GA that he felt his pain had deminished a bit and that his symptoms had relieved somewhat.

So home we went, no conversations with any consultants about what was happening next.

On getting home, the area where the bolt was had swollen and on returning to the ward we finally got to see an actual consultant. He did not speak to Eddie directly, poke his head and said to his understudies hudled around him that it was fine, to come back to the hospital to have the stiches removed and a CT scan done...and he was off.

A few days later we drove the 50 miles to return to have the stiches removed after cancelling the nurses appointment at the doctors on our street to have this done, knowing he needed a CT anyways. After this was done, we were told no CT was required. We spoke to an understudy in the hall way about possible shunt options, which he didnt seem to know about and ended up leaving with no answers to any of the questions we had....wasted journey.

On getting home I started to google, contacted neurosurgeons around the world, looked up conditions and tried to educate myself in what was happening. I was confused, other people with the same symptoms and problems as Eddie were getting surgery, shunts and returning to some sort of normality.

What was going on...?